Privacy Policy

The Connective Tissue Coalition (CTC) website is intended to provide information about our organization and its mission to drive awareness, research, and support for individuals and families affected by Ehlers-Danlos Syndrome, Marfan Syndrome, and Loeys-Dietz Syndrome.

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Privacy Policy: CTC is committed to respecting the privacy of our website visitors. We collect personal information such as name, email address, and phone number only if provided voluntarily. We do not sell or share this information with any third-party organizations. We use this information only to communicate with our supporters and to understand our audience better.

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Copyright Policy: All content on the CTC website, including text, graphics, logos, images, and videos, is the property of CTC and protected by United States and international copyright laws. Unauthorized use of this content is strictly prohibited.

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Links Policy: The CTC website may contain links to external websites that are not owned or controlled by CTC. We are not responsible for the content or privacy policies of these external websites. We provide these links as a convenience to our website visitors and do not endorse or guarantee the accuracy of the information on these external sites.

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Disclaimer: The information provided on the CTC website is for educational purposes only and should not be considered medical advice. We encourage visitors to consult with qualified medical professionals for diagnosis and treatment of medical conditions. CTC is not responsible for any actions taken based on the information provided on our website.

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Updates to Policy: CTC reserves the right to update this website policy at any time without notice. We encourage visitors to review this policy periodically to stay informed of any changes.