Frequently Asked Questions (FAQ)

How can I get my health records organized?

Medical Records

Can people with connective tissue disorders work?

Working With a Disability

Is it safe to get pregnant with a connective tissue disorder?

Pregnancy

How can I build a support system or find others living with my condition?

Building a Support System

How do I talk to my loved ones about my connective tissue diagnosis?

Social Settings

I was recently diagnosed and I am overwhelmed, where do I start?

Newly Diagnosed

I have a connective tissue disorder, am I eligible for Disability?

Disability

How can I find a knowledgeable team of health care providers?

Building my Medical Team

How can legislators help me personally or our community?

Legislative Help

Should I see a mental health professional to help me adjust to my diagnosis?

Mental Health

Where to Next?

Patient & Family Hub

Find Community

Daily Living Resources

The information on this website is for general educational purposes only and is not medical advice, diagnosis, or treatment. It is also not intended to serve as legal advice or replace professional legal counsel. We do our best to keep information accurate and up to date, but science and medicine change quickly and the content here may not reflect the latest guidance or apply to every individual. Please do not rely on this site to make medical or legal decisions. References or links to external resources, organizations, products, or services are provided for informational purposes only and do not constitute endorsement or recommendation.