Welcome to the Connective Tissue Coalition
We were honored to have Dr. Chip Norris speak at a CTC-sponsored New England CTD Support Group Meetup
We are a coalition of advocates, researchers, doctors, families, and individuals.
Many of us live with connective tissue disorders. All of us share a mission:
The Connective Tissue Coalition is 501(c)(3) nonprofit committed to improving the lives of people affected by Ehlers-Danlos Syndromes, Marfan Syndrome, Loeys-Dietz Syndrome, and related conditions.
Advancing Research and Support for people affected by connective tissue disorders
What We Do
Patient-Led Progress
We work to streamline the diagnostic process, expand treatment options, and foster a widespread understanding of Ehlers-Danlos Syndromes, Marfan Syndrome, Loeys-Dietz Syndrome, and related conditions.
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We promote research and collaboration across the medical and scientific communities to improve the quality of life for everyone affected by our complex, multi-system conditions.
Our Partners
"What the Connective Tissue Coalition has achieved in just five years is nothing short of inspiring. By raising funds and directly deploying meaningful grants, Jon Rodis and his team have shown what true community-driven advocacy looks like. They aren't just raising awareness—they are actively fueling solutions and changing the trajectory for individuals living with connective tissue conditions."
Christy Jagdfeld, CEO, Brain Inflammation Collaborative