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Volunteer Group

Fundraise for a better tomorrow

Welcome to our fundraising page! We are a non-profit organization dedicated to driving awareness, research, and support for individuals and families affected by Ehlers-Danlos Syndrome(s), Marfan Syndrome, and Loeys-Dietz Syndrome. With your help, we can make a significant difference in the lives of those affected by these conditions. Our fundraising efforts enable us to initiate, promote, and fund direct and substantive medical research, as well as support the medical, educational, and research communities with grants and donations from our supportive members and followers. Your donations will help us achieve our goal of being a source of knowledge and support, providing up-to-date information and resources for those in need. If you are interested in hosting a fundraiser for the CTC please fill out the form at the bottom of the page and we will be in touch soon.  

The Celebration of Life Program by the Connective Tissue Coalition offers a significant way to acknowledge and remember important milestones in your life. Whether it's to honor a loved one, commemorate a birthday, or special occasion, or celebrate a family member or friend, you have the option to create a personalized celebration page and raise funds for the CTC. You can also choose to support an existing celebration page or make a direct donation to the CTC.


Host  a CTC fundraiser today

We typically respond within 5 business days

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