Fundraise for a better tomorrow
CTC is a non-profit organization dedicated to raising awareness, funding research, and supporting individuals and families affected by Ehlers-Danlos Syndrome(s), Marfan Syndrome, Loeys-Dietz Syndrome, and related genetic connective tissue disorders. With your help, we can make a significant difference in the lives of those affected by these conditions.
If you are interested in hosting a fundraiser for the CTC, please fill out the form at the bottom of the page, and we will contact you soon. ​​
Fundraising News: Join a Run for Research!
We are CTC 5K--April 25, 2026-Hampton Beach, NH
​It’s with great pleasure that we're announcing our 1st annual We are CTC 5K!
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April 25, 2026, @10am
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Hampton Beach, NH
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At the first bath house across from Bernie's Beach Bar
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Registration time is 9am for all.
We will have a raffle table with a variety of items of interest. Snacks and water will be provided for everyone who attends.
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The ‘We Are CTC 5K’ is also a virtual event, so participants are welcome all over the U.S. to join and participate in the event with us where they live. We will provide more details for those participating virtually.
All proceeds go towards the Connective Tissue Coalition’s ‘Research Drive for 2025 and Beyond’.
Link with full details: We are CTC 5K
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Thank you to everyone who will be taking part next April! Please share this information with your groups and contacts. And don’t hesitate to contact us with any questions.
Celebrate a Life!
The Celebration of Life Program by the Connective Tissue Coalition offers a meaningful way to acknowledge and remember important milestones in your life. Whether you're honoring a loved one, commemorating a birthday or special occasion, or celebrating a family member or friend, you can create a personalized celebration page and raise funds for the CTC. You can also choose to support an existing celebration page or make a one-time or recurring donation to the CTC.​
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Our fundraising efforts enable us to fund the CTC Research Grants and initiate advocacy and support programs nationally. Join us...
We are CTC!
Host a CTC fundraiser today
Have an idea for a fundraiser of your own? Reach out! We typically respond within 5 business days