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Volunteer Group

Fundraise for a better tomorrow

Welcome to our fundraising page! We are a non-profit organization dedicated to raising awareness, funding research, and supporting individuals and families affected by Ehlers-Danlos Syndrome(s), Marfan Syndrome, and Loeys-Dietz Syndrome. With your help, we can make a significant difference in the lives of those affected by these conditions. Our fundraising efforts enable us to fund the CTC Research Grants and initiate advocacy and support programs nationally. 


If you are interested in hosting a fundraiser for the CTC, please fill out the form at the bottom of the page, and we will contact you soon.  

The Celebration of Life Program by the Connective Tissue Coalition offers a meaningful way to acknowledge and remember important milestones in your life. Whether you're honoring a loved one, commemorating a birthday or special occasion, or celebrating a family member or friend, you can create a personalized celebration page and raise funds for the CTC. You can also choose to support an existing celebration page or make a one-time or recurring donation to the CTC.


Host  a CTC fundraiser today

We typically respond within 5 business days

Thanks for submitting!

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