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Website Policy
for Connective Tissue Coalition (CTC):

Privacy Policy

The Connective Tissue Coalition (CTC) website is intended to provide information about our organization and its mission to drive awareness, research, and support for individuals and families affected by Ehlers-Danlos Syndrome, Marfan Syndrome, and Loeys-Dietz Syndrome.

Privacy Policy: CTC is committed to respecting the privacy of our website visitors. We collect personal information such as name, email address, and phone number only if provided voluntarily. We do not sell or share this information with any third-party organizations. We use this information only to communicate with our supporters and to understand our audience better.

Copyright Policy: All content on the CTC website, including text, graphics, logos, images, and videos, is the property of CTC and protected by United States and international copyright laws. Unauthorized use of this content is strictly prohibited.

Links Policy: The CTC website may contain links to external websites that are not owned or controlled by CTC. We are not responsible for the content or privacy policies of these external websites. We provide these links as a convenience to our website visitors and do not endorse or guarantee the accuracy of the information on these external sites.

Accessibility Policy for Connective Tissue Coalition Website

At Connective Tissue Coalition (CTC), we are committed to making our website accessible to all users, including those with disabilities. We strive to comply with the Web Content Accessibility Guidelines (WCAG) 2.1 Level AA standards, as recommended by the World Wide Web Consortium (W3C).

Accessibility Features To ensure that our website is accessible to all users, we have implemented the following features:

  1. Alternative Text: We provide alternative text for all images on our website, which can be read by screen readers.

  2. Keyboard Navigation: Our website can be navigated using the keyboard alone, without the use of a mouse.

  3. Headings: We use headings to organize the content on our website, which can be read by screen readers.

  4. Color Contrast: We have ensured that the color contrast on our website meets the WCAG 2.1 AA standard, making it easier for users with visual impairments to read.

  5. Captioning: We provide captions for all videos on our website.

  6. Language: We provide the option to switch between languages on our website.

  7. Audio Descriptions: We provide audio descriptions for all videos on our website.

Feedback and Suggestions We welcome feedback and suggestions from our users on how to improve the accessibility of our website. If you encounter any difficulties accessing our website, please contact us at [contact information], and we will do our best to address the issue as soon as possible.

Accessibility Team, We have appointed an accessibility team to monitor our website and ensure it remains accessible to all users. The team is responsible for reviewing and updating our accessibility policy and implementing new features and improvements to enhance the accessibility of our website.

Updates to Accessibility Policy We may update this accessibility policy from time to time in response to changes in accessibility guidelines or feedback from users. We will post any changes to our accessibility policy on our website, and the updated policy will be effective immediately upon posting.

Contact Information If you have any questions or concerns about our accessibility policy or the accessibility of our website, please contact us at

Disclaimer: The information provided on the CTC website is for educational purposes only and should not be considered medical advice. We encourage visitors to consult with qualified medical professionals for diagnosis and treatment of medical conditions. CTC is not responsible for any actions taken based on the information provided on our website.

Updates to Policy: CTC reserves the right to update this website policy at any time without notice. We encourage visitors to review this policy periodically to stay informed of any changes.

Accessibilty Policy
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