Find the Right Support Group For You
Selecting a chronic illness support group is an important decision, and it's essential to choose a group that's a good fit for your needs. Here are some tips to help you select a support group:
-
Research your options: Look for support groups in your area, and research them online. You can also ask your healthcare provider or other trusted sources for recommendations.
-
Consider the format: Some support groups meet in person, while others are held online. Decide which format is best for you based on your preferences and needs.
-
Determine the focus: Some support groups are geared towards specific conditions, while others are more general. Choose a group that aligns with your needs.
-
Evaluate the facilitator: The facilitator plays a crucial role in the success of the group. Look for a facilitator who is knowledgeable, empathetic, and respectful.
-
Attend a meeting: Attend a meeting or two to get a feel for the group and its members. Ask questions and determine if the group is a good fit for you.
Remember that support groups can be an excellent source of comfort, education, and resources. Take your time and choose a group that will meet your needs. We're here to help you get started. Below are a range of support groups, organized by condition, age group and location.
Support Groups by Condition
Ehlers-Danlos Syndrome
Marfan Syndrome & Loeys-Dietz
Support Groups by Location
The information on this website is for general educational purposes only and is not medical advice, diagnosis, or treatment. It is also not intended to serve as legal advice or replace professional legal counsel. We do our best to keep information accurate and up to date, but science and medicine change quickly and the content here may not reflect the latest guidance or apply to every individual. Please do not rely on this site to make medical or legal decisions. References or links to external resources, organizations, products, or services are provided for informational purposes only and do not constitute endorsement or recommendation.