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Frequently Asked Questions

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Can people with connective tissue disorders work?

Working With a Disability

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How can I build a support system or find others living with my condition?

Building a Support System

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How can I find a knowledgeable team of health care providers?

Building my Medical Team

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How can I get my health records organized?

Medical Records

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How can legislators help me personally or our community?

Legislative Help

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How do I talk to my loved ones about my connective tissue diagnosis?

Social Settings

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I have a connective tissue disorder, am I eligible for Disability?


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I was recently diagnosed and I am overwhelmed, where do I start?

Newly Diagnosed

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Is it safe to get pregnant with a connective tissue disorder?


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Should I see a mental health professional to help me adjust to my diagnosis?

Mental Health

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