Board of Directors
Maria is a disabled non-binary mother-of-two, jazz-loving immigrant from Germany. "I live with a heritable connective tissue disorder that is unique to our family". Since 2016, Maria has been leading the Ehlers-Danlos Syndrome Chicago Support & Awareness group. Maria provides support to many patients with connective tissue disorders, in person as a patient advocate and remotely.
Maria is passionate about policy research and advocacy to improve access and quality of care for people with heritable connective tissue disorders. Maria has an academic background in education and community leadership. Maria loves solving puzzles and problems!